Ultrasound

We had an ultrasound today. 14 weeks and 3 days. She is so gorgeous in her pictures and I'm so glad we have those and her DVD's. The specialist didn't want to say the hygromas had resolved, though they looked less to us and they measured a mm or 2 less but they def aren't bigger. She said she thinks there is a cystic hygroma down her side as well - I think under her arm? I asked her if she thinks our odds have improved since 2 weeks ago and also because the CVS was clear. She said "there is something wrong with your baby, we just don't know what yet but yes I think your odds would have improved for bringing home a live baby but whether it's healthy or not is the question" so pretty devasting sitting there hearing that.

It is so hard to accept that as our daughter looks so good on ultrasound, she is measuring perfectly and her heart looks very good too. They can tell her kidneys are working and her brain is the right size and shape too. I guess the hard part is not knowing what is really going on neurologically and we won't until she is born and probably awhile after that. They saw 2 choroid cysts on her brain (one on each side) but when I asked the specialist about them she said that they find them all the time on normal babies and she wouldn't have mentioned them to us, it was only because I asked as I had asked the ultrasound tech about them. Still hard to relax.

Just not fair and I know there are lots of things in this imperfect world that don't go right and lots of babies die everyday and you never find out why, and it doesn't bring them back anyway but I just hate  being in this limbo. If she survives to term and is born that is such a long way off - the 4th of September feels like years away at the moment. So much unknown.

The specialist said that we probably won't get anymore answers on ultrasound during the pregnancy. She still needs to be monitored closely and hydrops (fatal) is still a real possibility of developing. Unless the OB or the Geneticist or another specialist wants an ultrasound in between we won't be having one until I am 19 weeks pregnant - 5 weeks, that seems like an eternity away, though we still will see her "on screen" before then a few times as my OB will do an ultrasound everytime I see him and at the moment that is weekly.

Once again thanks for all your support, it means so much to us. At last check over 3,500 views have been made of this blog which is amazing - people from Australia, US, Uk, Sth Africa, United Arab Emrites, Jordan, China and Vietnam!

Again if anyone is reading and has any information or personal experience with cystic hygroma's please contact us.