Ava Grace - Journey with a Cystic Hygroma

Our daughters journey with cystic hygroma / lymphatic vascular malformation and my journey through grief from the loss of our daughter Ava Grace.

Tuesday, 30 June 2015

"If the sickness wasn't there" poem by Matthew Musgrove

This poem was written by Matthew Musgrove for his daughter Charlie Eden who died from Cystic Hygroma, Hydrops and Turners Syndrome. I ...

Thursday, 25 June 2015

Cystic Hygroma / Lymphatic Malformation Information

This is some information if you want to know more about the devastating condition that Ava had. I want to start by saying that we have h...

Monday, 22 June 2015

Our family of 5

- Our family of 5- We received this beautiful ornament statue today in the mail. What a beautiful representation of our family of 5 with Ava...

Sunday, 21 June 2015

Torture of a Mother

Torture of a mother Torture is... - Vomiting every day for months but not be rewarded with a live healthy baby - Telling your living child...

Sunday, 14 June 2015

3 nappies in a row

These nappies will be on their way to my local hospital soon. They will receive two, one for their baby to wear and one for their mem...

NT City2Surf Bears of Hope fundraiser

I am so proud of my twin sister Nicole running in the NT City2Surf. She, just like myself would not consider herself a runner but recently h...

Saturday, 13 June 2015

Lovely surprise gift

What a lovely surprise to find this on my doorstep a few months down the track - so nice to know people are still thinking of our Ava and ...

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About Me

Ava's Mummy xxx: I am a mummy to 4 beautiful children. When I started this blog, we were praying for a miracle as our daughter had been diagnosed with a cystic hygroma in utero. Her condition worsened and she deteriorated quickly. She was born into heaven on the 16/3/15. We love our Ava Grace and she will always be a part of our family. I hope this blog will bring awareness to her condition which is also known as lymphatic malformation. I want to break the silence around miscarriage, stillbirth and infant loss. https://www.facebook.com/Ava-Grace-no-footprint-too-small-456622537829000/ https://www.facebook.com/groups/1692090737678771/

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